Incontinence Impact Questionnaire
and Urogenital Distress Inventory

Survey Instruments to Assess Impact of
Urinary Incontinence on Women's Lives

Women’s Health Center of Excellence for Research, Leadership, Education (WHCoE) researchers helped develop and validate two survey instruments for collecting detailed data on how urinary incontinence affects women's lives.

The Incontinence Impact Questionnaire (IIQ) measures the impact of urinary incontinence on activities, roles, and emotional states. The Urogenital Distress Inventory (UDI) measures how troubling the symptoms are to women.

Uebersax JS, Wyman JF, Shumaker SA, McClish DK, Fantl JA.
Short forms to assess life quality and symptom distress for urinary incontinence in women: the Incontinence Impact Questionnaire and the Urogenital Distress Inventory. Continence Program for Women Research Group. Neurourol Urodyn. 1995;14(2):131-9.

Shumaker SA, Wyman JF, Uebersax JS, McClish D, Fantl JA.
Health-related quality of life measures for women with urinary incontinence: the Incontinence Impact Questionnaire and the Urogenital Distress Inventory. Continence Program in Women (CPW) Research Group. Qual Life Res. 1994 Oct;3(5):291-306.

The WHCoE administers the distribution and use of these two questionnaires. On request, we will send copies of the self-administered instruments (both short and long forms), and scoring materials for each instrument.

There is a one-time, $250 administrative fee for use of these questionnaires.

To receive these materials, complete the Request Form and return it to the address listed on the form with your payment.

Do you have a question? Someone else may have asked it. Visit our FAQ page.

For more information about the IIQ & UDI, please contact Natalie Barrett.