Clinical Neurogenetics
Department of Neurosurgery
Wake Forest University School of Medicine

Links to information on neurogenetic diseases treated by neurosurgeons: Neurofibromatosis, Tuberous Sclerosis, and von Hippel-Lindau Disease.

Links to more information on neurofibromatosis (NF-1 and NF-2) Links to more information on tuberous sclerosis Links to more information on Von Hippel-Lindau disease Von Hippel-Lindau Disease and Hemangioblastoma Von Hippel-Lindau Disease Family Alliance Homepage VHL Family Alliance Handbook: What you Need to Know about VHL VHL Family Alliance via email <info@vhl.org> More information about VHL What is Von Hippel-Lindau Disease? An International Listing of VHL Support Organizations Information in French Information in Spanish Information in German The Danish VHL Association Danish and English von Hippel-Lindau Disease from the National Institute of Neurological Disorders and Stroke (USA) What is von Hippel-Lindau Disease? Is there any treatment? What is the prognosis? What research is being done? Where can I find more information? Von Hippel Lindau Disease: Genetic, Clinical and Imaging Features Stereotactic Radiosurgery for Hemangioblastomas of the Brain. Ajay Jawahar, M.S., Douglas Kondziolka, M.D., Yolanda I. Garces, M.D., John C. Flickinger, M.D., Bruce E. Pollock, M.D., and L. Dade Lunsford, M.D. UPMC Presbyterian, Pittsburgh, PA. National Cancer Institute Kidney Cancer Web Page Galaxy.Net's VHL Links Page Tuberous Sclerosis and Subependymal Giant Cell Astrocytoma NTSA's National Tuberous Sclerosis Association Homepage Connecticut Tuberous Sclerosis Association Australasian Tuberous Sclerosis Society Tuberous Sclerosis Association U.K. Tuberous Sclerosis International Italian Tuberous Sclerosis Web Site Tuberous Sclerosis Association of Greece Tuberous Sclerosis Canada Sclerose Tubereuse (TSCST, description and 800 number) TSCST via e-mail <jillian.dasilva@ablelink.org> Cody and Jordan's Page with information and links regarding TS by Eric, Cody, and Jordan Adams. Galaxy.Net's TS Links Page Tuberous Sclerosis - Bourneville's Disease with images from the U of Iowa Information on Tuberous Sclerosis from the (US) National Institutes of Neurological Disorders and Stroke TUBEROUS SCLEROSIS What is Tuberous Sclerosis? Is there any treatment? What is the prognosis? What research is being done? Where can I find more information? Neurofibromatosis NF Inc. HomePage. The NF, Inc. Homepage is designed to provide easy access to information about neurofibromatosis as well as NF, Inc. activities and events. NIH Consensus Development Conference on Neurofibromatosis (1987) International Neurofibromatosis Association French (Swiss or Belgian ), Dutch Neurofibromatos föreningen i Sveriges hemsida (Swedish ) National Neurofibromatosis Foundation USA Chapters are also available in many areas of the U.S.A. Neurofibromatosis, Inc. Galaxy.Net's Neurofibromatosis Links Page Information on Neurofibromatosis from the (US) National Institutes of Neurological Disorders and Stroke What are the neurofibromatoses? What is NF1? What are the signs and symptoms of NF1? When do symptoms appear? How is NF1 treated? What is NF2? What are the signs and symptoms of NF2? When do symptoms appear? How is NF2 treated? Are there prenatal tests for the neurofibromatoses? What do scientists know about the neurofibromatoses? What research is being done on the neurofibromatoses? How can I help research? Where can I get more information? Page Neurofibromatosis International Webpage (in Switzerland) What is neurofibromatosis? Related Indexes The Wake Forest Hydrocephalus Index The Wake Forest Epilepsy Index The Wake Forest Hydrocephalus Index The Wake Forest Spina Bifida/Myelodysplasia Index The Wake Forest Chiari/Syrinx Index The General Disability Links The Wake Forest Neurosurgery Brain Tumor Index has more information on the treatment of tumors of the brain or spine and support for patients, family, and other caregivers. The Wake Forest Neurosurgery Meningioma Index has more information on the treatment of benign tumors of the brain or spine such as meningioma and hemangioblastoma. The Wake Forest Neurosurgery Arteriovenous Malformation (AVM) Index Homepage has more information on the treatment of arteriovenous malformations of the brain and spine. Wake Forest Neurosurgery Neurogenetics Index: Information on Neurofibromatosis type I (Von Recklinghausen's Disease), type II (bilateral vestibular schwannomatosis), Von Hippel-Lindau disease (hemangioblastoma) and tuberous sclerosis (subependymal giant cell astrocytoma). General Pediatric Neurology Links